Hi everyone, hope you are all well. I’ve been keeping things very quiet in every respect. The last time I wrote anything I was getting the dizzy spells which thankfully passed a week or so after, since then I’ve reduced the steroids a couple more times but haven’t had as bad effects after, still very tired and drained each time and have noticed my chest getting worse and finding it harder to breath but nothing awful just get very out of breath doing the simplest of things.
The main reason I’ve been so quiet is because I’ve really not been able to do anything, there’s not much to say about sitting watching tv and reading, I could start on reviews of things but the effort of doing that is just too much as I’ve so little motivation at the moment.
This all sort of stems from being sore doing absolutely everything, my legs are impossibly sore and have just been getting worse on a daily basis, I do get the odd day, maybe one day a week where I am comfortable enough to be able to manage things but even then, it’s bloody sore. Getting up from the seat to even go to the toilet or get a coffee is just too much and I leave it as long as possible before finally doing anything.
When I go out I try to get as much done in all the one run but stopping before doing too much. I always really feel it afterwards too and the following day. Between being so tired, maybe even overly tired and being sore, leading to not being able to sleep which makes me even more tired the next day and because I’ve been tossing and turning I’m even more sore with that.
It’s just constant and unbearable and because of this I find it hard to concentrate on anything but it.
There was possibly some good news though, a couple of weeks ago I had my pre assessment for the surgery in my first hip, the left one. This in itself was a lot sooner than initially expected, the surgeon at the first appointment said about a year, to get it 5 months later is amazing.
During the appointment they wanted to coincide it with when I get the IGG which is every 4 weeks, coincidently it was the following day after the pre-assessment that I was getting it and it was heavily suggested at the time about potentially getting it after the next infusion which would now (when writing this) be in 2 week. I’m not building up my hopes too much for this and still haven’t heard anything, but otherwise it’ll be in 6 weeks or any increment of 4 weeks. But it sounds more like it’ll be sooner than later, sooner being the 6 months side and later being the year side.
So even if it isn’t for another 3 months it’s still a lot sooner than initially expected. The thing is though, that it’s just the one hip and I know it will hopefully be an improvement, or at least a step forward. I’m still in a lot of pain from the other hip which will hopefully be done soon enough after. There is also the knee that is playing up and my back and my chest, I know I should focus on the positives but when there are so many things and constantly being reminded there are so many things it’s impossible to focus on something that will have a minor improvement and in itself be a lot of effort to recover from and work to build things up again after the surgery, even if it all goes well.
It’s a small step forward, or at least at the moment it’s a raised foot to step forward. Anyway that’ll do for now. Until next time.