25th September - 13th November Ive been meaning to white the next few posts for a while but never bothered to get round to it, but as the potentially main stretch is finally close by I thought I would catch everyone up on things. I'll keep them short and brief cause.
As you know on the 25th I was admitted in to hospital as I had started coughing up blood and was generally feeling crap, they have ruled out lymphoma as there were no more swollen nodes and the nodes in my chest seemed more like cavities and lesions rather than swollen nodes and so they started testing for infections.
Initially I was in isolation on antibiotics while they tested for more serious things like tb and all came back clear and was downgraded so everyone didn't have to dress up like they were going to space.
I was have fevers and they took blood cultures numerous times, similarly to sputum samples, basically this for 2 weeks. One, only one result came back with a positive result for anything and it had a fungal spore in it and we're unable to culture anything from it.
At this point they stopped giving me the antibiotic and started me on antifungal infusions, and started to reduce my steroids to get me off them fast as this could contribute to it being worse, although they had an idea that the spore may have came from the antibiotic as that's how it is created.
The same again after, no positive results for anything including from a pin biopsy I got on one of the lesions in my lung. They were running out of ideas of what to do. They'd ran all the tests they could, checking my heart for heart disease also.
There was nothing more they could do for me in hospital at this time so they allowed me to go home until the next step which I was a sceptical about and I certainly wouldn't be able to go to my own home alone so went to my parents to stay which is what I was sceptical about because I knew how bad the fevers and coughing fits could be and I was scared that they would not be able to manage, a couple of times they ended up being close to bringing me to a+e, but never did.
During my time at home was lovely being able to spend time at home and I was feeling a lot better if still not great and even eating a lot better also.
We got results back from the toxicity level of the antifungal tablets it was too high and I had to stop them, then the next check one of my liver functions was off so couldn't go back on to them again, although I felt better off them.
Next step was to get a wedge biopsy of one of the lesions in my lung, taking a much larger sample so they can get much better results of what this could be. It was played down that it was just a pinhole procedure and when initially seeing the surgeon he said it would only be at the largest the size of his finger.
Later when going to the preassesment we were told a different story that there would be drain pipe hole and there would also be the incision itself which would be at least 4 inches, if they needed to dig in a bit more it would be about 6 inches and it may even be right down my side it things go to pot.
I was generally a quite worried about it, not the bigger incisions but just an incision as with all the coughing I would do would be agony on the mark.