Blog 3/2014 - 1

Sunday, 2 March 2014


Do I Have to Pick a Title?


Sunday 23rd February, so following on from the last blog.... Like the rest of them.

In the Evening just kept it fairly quiet and watched Independence Day on TV, the day I was initially diagnosed with Lymphoma coincidently, other things done not mentioned on the previous post about today was that I got my 8th level 90 character on WoW good old Charleis the Camel Hoarder. I also sent off to LoveFilm asking about the pricing changes with the new setup of by post and instant. Hopefully the DVDs will be less than £10, I'd be happy with that. This evening I have felt pretty great! Probably the best I have felt for a few weeks, in such a good mood, still got a cough though, but as long as I'm happy I can have that cough all the time.

Monday I took a trip into town had a nice walk in and it was a pretty good day, my good mood has continued today, it was a pity that when I woke up I was pretty damn sore, my back was sore with the swollen glands digging in, chest was tight also with the glands swelling, jaw's sore with grinding my teeth at night and the lymph system seeming to be blocking up, nose and head or the same reason. But after a while of being up they seem to ease. I didn't spend much time in town and towards the end of being there I was starting to get very tired and just took the bus home. Once home I had a delivery, which was the mount for my camera to attach it to the telescope and had a play around with that. As the day went on from here I just got pretty bad, it just seemed to kick in pretty quickly, I was wanting to get to the quiz tonight as I haven't been about for at least three or four weeks, but as it was getting worse there is no way that I would be able to and enjoy it, but they won anyway, I knew they didn't need me.

Tuesday was a very, very rough day, woke up with the usual aches and pains but when I got up this time nothing seemed to help to ease them. Again very little was done today apart from trying to keep warm and pass the day as fast as possible till I get onto tomorrow. The whole day was terrible but getting gradually more terrible as it went on. I have no appetite, never really did and never really enjoyed eating and only eat when I feel like I should be eating, I could easily go a couple of days without food, as long as I had a glass of water beside me I'd be fine, most of the time. But after dinner this evening my fever started kicking in and was freezing even though the room as very warm. After a while of shivering and breathing being shallow I took my temperature and it was up to 38.77 and thought it may be best to have a couple of paracetamol to try and lower it. Wrapped the blanket around me and basically just lay there half asleep for a couple of hours and it seemed to finally ease, a little at least.Best part about today was getting an invite to a friends engagement party late next month, although it's over in Scotland and can't exactly say i'll go if i'm getting chemo or something like that, i will have to wait a couple of weeks to know a bit more of the long term plans. Worst thing about everything is never being able to make plans, short or long term, this isn't just with the Lymphoma though before with the ITP it was as bad and any time i did try to make plans they fell through because my stomach was playing up or the counts were dangerously low. It's incredibly frustrating. I also got a call to go and see a doctor in the Royal, which I'm quite certain will be for the biopsy, at long last, I don't know if they will do it there and then, but if it is anything like the last time it should be possible as the swollen gland is quite close to the surface and not really around any real major organs.

Basically Wednesday was just killing time before heading over to the hospital, when I got there I discovered it was a nose and throat outpatients clinic, wasn't there very long and I went in to see the doctor who stated at the start "I just wanted you here so I could feel the gland that we will be removing". This was the first I was informed that they would be taking it out, he was surprised I didn't know as much as I was surprised about not being told. I knew this was one of the ways to do the biopsy but you'd think they'd let you know about some minor surgery a little bit before meeting the surgeon. Anyway at least it would give a better idea of what we are actually up against, plus I'll have another scar, the doctor had one himself of what I will have. The evening we had the family over as we do every Wednesday, always nice to see them all. Oh the LoveFilm price is lower than I could have initially thought basically I'm now saving around £41 a year and the sub is what I was paying -£5.99 for the instant as I'm with Prime so works out £7 odd much lower than the £10 I was hoping for.

Thursday I woke up a little grumpy and being whistled at like I'm a dog to come into the room rather than being called like a human certainly didn't help. Nothing too much of interest happened today, kept it very low key, a highlight was shaving my head... and not my beard. Played about for a while with the camera and telescope to get used to that a bit and then later trying to get some pictures of Jupiter, didn't quite work as planned and was a little disappointing, but it was not quite as bad as it sounds, you learn more from doing things wrong that you do from doing things right all the time... hence why I know so much. Also tonight there was some aurora and was visible from Northern Ireland and most of the UK, I wasn't expecting to see anything as the picture will explain, way too much light pollution in Belfast.

Friday was hospital day, worst part was that I woke up during the night for a few hours with turning over in my sleep and making me basically go into a coughing fit, finally got back to sleep again but I think I only managed maybe three hours. Still had a bit of a cough in the morning but nothing too bad thankfully. Hospital was just the usual stuff, was in a good mood again today so that made it a bit better, not that I don't actually enjoy it. When I went in to see the doctor she was just asking the usual questions and said about feeling so bad this week, by the end it was basically go for an x-ray and let's see if there's anything in your chest, which there was at the bottom of my left lung. She gave me a call a bit later about this after I had made my way more or less home and I had to go back later to pick up some antibiotics. The same ones I was on but instead of 2 a day it's up to 3 and another antibiotic, the one that always remind me of milk for some reason, I don't think it tastes like milk or anything, but I just think of it, it also gives a rotten taste in my mouth too. Killed a bit of time and later and just before making my way to hospital it was nice and sunny so I thought I would try out my new sunglasses. but of course not even half way there it clouded over but I still kept them on recording my journey. I ended up walking home so turned out to be quite a long walk. Watched the rugby in the evening and that was basically Friday over. Today I got a call from the nurse up in the Royal about going for my pre op assessment on Wednesday so another step closer to getting that sorted, hopefully won't be long after that that I'll be getting the gland removed.

Saturday and Sunday were basically just lazy days where I sat around watching TV and playing on the computer and spending my Sunday evening writing this for a while, worst part was that I discovered that Premier sports was no longer free on Virgin so I won't be getting my NHL fix on the weekend mornings anymore. Maybe I should do something tomorrow, might just have another lazy day, the weather is a major factor and if I'm not feeling great like I haven't been the last couple of days will definitely coax me to just stay at home. We shall see.