I'll keep this one short but basically since the last post I've had highs and lows, but all in the same days, mostly the mornings I have been feeling worst, with either the sore back or the cough waking me up at about 6 or 6.30 and the only time that it wasn't is if I was out drinking the night before. Some days I have been coughing all day and others it would just be the morning and then clear up once I get out of bed, similarly with the back pain. Some days I would just lie on in bed for hours and know that if I was to get up it would clear up, but still just lie on. Other mornings I would get up and things would be great for the rest of the day. Others at about 1-2 I would start getting my chill and have to go to bed because I felt so rough.
Skipping on to Friday 14th February I woke up at 6.20 with a coughing fit and took a few minutes to settle, but from my experience I knew that a locket would settle it pretty quickly from the fit state. What caused this was lying on the one side all night and then just as I was waking, shifting to the other side and that's what seems to trigger it. The cough continued as a tickle for a few hours after and I've found that even talking has made me cough a bit too.
After a short breakfast I went to hospital to get the results of the PET scan that I had last week up in the Royal, and thankfully didn't have to wait around too long to get in to see the doc, not just any doctor though, the head doctor for it, this wasn't going to be a simple in and out visit. Once I got in with him he was asking how I was and I explained about the bug and that the antibiotics just seemed to make it worse if anything and started off the cough, he then asked again "how are YOU?" after that explaining about feeling rough, the pains, the blocked face and neck, and the tiredness that I had linked to the lymphoma rather than the bug. Once I had finished what I was saying he moved his seat closer *sigh* not good and he started to talk about the scan results.
Firstly he said, well there are still swollen glands, some in your lunges and one in your neck, had a feel and there seemed to be a lump but nothing too much, he had a feel and said it was quite small too, then he went on to talk about them and what they would do next. So the next step is to get a biopsy on one of the glands and to try and find out exactly what is going on, he continued to say that he wants to get that done urgently.
He continued on to say what he thought of the whole situation and he was obviously a bit disappointed himself that plan a and b had not worked, he said that the initial diagnosis of Marginal Zone Lymphoma is a very mild form of lymphoma and the RCVP should have done the trick to clear it up and definitely the RCHOP should have worked and continued to say it's "very rare" that they would not do the job. Very rare... sums up the story of my life, my dad later said "it wouldn't be you if you couldn't find the rarest things". (maybe not quite as politely)
Basically now is just a waiting game again to try and find out what is wrong with me, things seem to be pointing in the lymphoma direction, but there is still the chance that it is just the bug that is causing it, may even just be that the glands are still swollen from months ago and they just haven't cleared.
Seems like everything is back to square one, I don't think I am as upset as what I should be and the most annoying thing is that I am on antibiotics for two weeks so can't even go out and get drunk so I don't feel so bad in the mornings. Ah well summer is coming.