Blog 4/2014 - 3

Sunday, 20 April 2014


and home.


So the rest of the time spent in hospital is a bit of a blur all into one, nothing much differentiating one day to the next, thinking of a few things that happened, all that did happen. I got my ears tested to see what they were like with the tinnitus and even with the tinnitus they said that my hearing was well above average and that it may be the slight change that I have noticed that is making all the difference and why it seems to be so bad, he did say that towards the higher end that there was a dip but even with that it was still very good. During the hearing test though as I was hooked up to the three drips I kept hearing the clicks of the machine and initially I thought that it was part of the hearing test till it twigged on me that it was the machines and a few minutes into the test with having to wait out in the waiting room the battery started to go and so started to beep itself. Because of this they had to open the door and plug it in which I'm sure didn't help with the results either and probably brought them down a bit too.

There were four people in the ward one, all of us on the same chemo (at the time) just different doses me and another guy were on the exact same thing the other two were on a slightly less dose one over three days the other over five, the one that was on the three day course seemed to start suffering really badly on the Tuesday, didn't seem to be any reason for it and everyone else was still all in good spirits, this continued into the next day as well for him and he did get out ok but it turned out that he was on the booze at the weekend and that's what had triggered it to be so bad, his kidneys probably just couldn't cope with it all, bit of a lesson for him and a warning to me to make sure I avoid any. Although not that I would feel up for anything like that with the way I was the last time. I got a the portable TV sent out on Wednesday so had a bit of a play with that on Wednesday evening but nothing too much as my mum was over but the next day had a better bash at it and works perfectly when the antenna is out the window, picks up everything perfectly, so I'll get to watch the IPL which I done on Thursday and Friday too.

Come Thursday I was still feeling pretty good and there was a new patient came in, he has been going through the chemo for a bit less time than me but has had a lot more done with surgery and he went through it sixteen years ago to, he was quite fun to be around and certainly lifted the room, which was already in pretty good form all things considering. I had bloated up so much with all the fluids that I was getting and started on diuretics on the Wednesday to get rid of that, Feels pretty rotten when you're all bloated up, uncomfortable, hard to breathe and move, not nice in the slightest. First one was given to me in the afternoon which was fine I was peeing all day and then died down at night, the next day though I was given one in the afternoon and then the evening, the evening one didn't seem to kick in until around midnight so I was basically running to the loo all night because of that and I had the rattliest trolley to carry the pumps around with, felt like an earthquake going along during the night. But the others seemed to understand and weren't that bothered by it.

Friday I was getting more wrecked directly from the chemo, more drained tired and uneasy, the potassium levels had dropped too but they were happy enough to just give me a drip and that evening they let me go home. Got finished for about 7.30 and home for 8, was nice to get home but everything is so much noisier and just hurts my ears. Quiet night not doing much and then off to bed and running to the loo again over and over, getting rid of the excess fluid still. Saturday was a fairly relaxed day a lot of sitting around on the computer and watching Stargate Atlantis, was fine in the morning but as the day went on I'm just getting more and more rough, I thought I would have a crash today and be whipped out but I'm not as bad as I was expecting to be. That night I was just too tired to be on the computer and flung myself into bed and that was me till morning, apart from the running to the toilet all the time.

Sunday was a fair bit worse than the previous days, but comparing it to last time it's not too bad. I keep on eating to try and tasting things, but the taste never comes so I keep on eating and then over eating, I'm going to have to sort that out because it has put my stomach into knots and isn't helping with the nausea which I think I can flush out with just drinking plenty of water, I just need to make sure I can put the water into me with the food I'm eating. The bouts of tiredness haven't been great either, you could be sitting there full of energy one minute then a few seconds later your eyes are closed and you've missed a few minutes of the program you were watching and building up the energy to do anything is bad, even when you know that the outcome will be you in bed resting, the thought tires you out.

This evening my hearing was going as well and people's voices were going right through me it was as if they were just shouting right into my ears, incredibly annoying, I've also been really tired and could probably just pop off to sleep, but I thought I would do this and then maybe stick on a film or something, not that important, didn't eat too much dinner as I was still stuffed from my lunch earlier and haven't ate much chocolate at all, a cream egg, my stomach just isn't making any acid so things just seem to sit in there for a while longer than normal which isn't helping with things either. I'm just gonna sip on water and hope it passes soon enough and a bit quicker than the previous time too. I also get this weird feeling in my face too, as if there pressure at different points, like if I was wearing glasses and stuff like that and my jaw being pushed to the side, it's unusual but will pass. I also have now a real tingliness, not the numbness I get on my hands and feet that I have, which is a bit nice when you wiggle your toes, it's a bit tickly, but a painful pin prick tingliness whenever I touch my arms chest and shoulders, don't think it's anything serious, doubt it is.

But generally feeling much better than the previous time and the stay in hospital was quite enjoyable, if that's the correct term to use. Not even gonna bother reading over this and just go for a nap cause I'm now done out.