Hi everyone, hope all is well. I’ve been leaving this a while as there hasn’t really been much going on and I’d end up just repeating myself over and over. It’s pretty much been the same as what I’ve been doing the last couple of months, killing time, but trying to be productive in one way or another and just hoping things start to feel better.
I can’t deny that things are improving, the aches pains are certainly not as bad as they were even last month but they are still there and the pain meds a still quite necessary and even extra pain meds which help with other problems I’m consistently having.
Nearly every morning and early evening I feel as if I’m coming down with something, glands in the neck just feeling bunged up, sinuses blocked and my eye just feeling a bit weird, mostly always on the right-hand side. There are also the joint pains with it too, no fevers and considering it’s been going on for months now, I think it’s just “normal”. Most days after some paracetamol it would settle, other days especially more recently it just seems to linger on.
The doctors don’t seem to be too concerned about it at all, although they are more concerned about reactions to the BMT rather than how I’m feeling and even the bone and heart problems. It has been a year now since I got out of hospital from the transplant and they are really pleased with how things are going and I recently had a PET scan. The PET scan showed that, and for the first time mentioned, that I am in remission, this wasn’t really a surprise and what was expected but was nice to finally actually hear it.
The scan also showed the multiple fractures in my back and the report mentioned broken ribs, I was never told anything about broken ribs before but some of the pains that I have/had would seem to be more from ribs than the back. The funny thing for me is that prior to last year I had only ever broken a couple of toes, and in the last year I’ve fractured my back 5 times and broken ribs, I didn’t even bother asking how many but I can judge that it’s at least 4 from different pains I’ve had.
Last time I was at hospital last week they took an extra load of blood tests to check how things are doing, I am officially a chimera which I think is pretty cool. Hopefully the results will all come back positive and then I may be able to stop the IVIG and that would mean I’d be able to get all my vaccines again, for the 3rd time.
I think I’ve come to accept that there is only so much I’ll be able to do, I’ll not be able to go on adventures the same as I did before and if I do go anywhere, it would just be for a mild stroll or sitting around observing. I had in a way been expecting this with the way I had been preparing the car, that I can open the boot and sit in there comfortably and even go for a nap if needs be.
Anyway, that’s the boring health stuff, now on to the exciting things that I’ve been doing…
Err well, I’ve really not done anything, I don’t have the confidence to go out for walks anywhere and I’ve just been trying to improve things on the treadmill until I do. I have an apprehension of leaving the house because I just don’t know how long I will be able to last before I get too sore and even more so of hurting myself more. But the thing is if I go for a walk to the shop or anything I really enjoy it, as simple as it may be.
I’ve been doing a lot of reading and since I started counting at the start of last year I’ve read over 120 books, I’ve been trying to read everything and anything and recently I’ve been reading a few sci-fi books again which I really enjoy, especially the Bobiverse books. With the nicer weather I’ve been able to sit out on the balcony reading in the mornings while the sun is shining on it, only issue is the breeze but I have a few ideas that might help with that, which may get sorted by the end of the week, need to see how I’m feeling though and whether I’d be able to do it on my own.
While I’ve been out reading, I’ve noticed there are a few crows that sit close by, so I’ve started to try and lure them down to not exactly sit beside me but be comfortable to come down while I’m there. I’ve left out bits of food and been able to get a few decent pictures of them, but they always wait until I’m away before they come down to nab it, so the next step is to only have the food there when I’m there and hopefully they might learn that and come down for a free meal while I’m there. We’ll see how that goes though, if it ever goes, cheaper than a pet and less responsibility.
The odd film and plenty of sport is also thrown in there, I’d like to do something more productive though and hopefully in the next few months I’ll be getting back to work so need to get a good seat that I’ll be comfortable sitting in for longer periods, I’ve been changing my sleeping schedule so that I’m getting up about 6.30/7 rather than 9 to make the most of the daylight and early morning and maybe make the most of the daylight before most of the world wakes up. It’s nice and quiet in the mornings too.
I had hoped to be back at work well before now, it just seems like one thing after another holding things back, but then realistically I probably have been optimistic with my timeframes and considering there still a lot of things going on. Just need to work on the pain management, concentration and staying awake for a few hours… I’ll get there though.
I suppose that’s everything for now, not particularly exciting as usual. Today’s plans include having a bit of a read and try and lure the crows down, will try the treadmill for a while, no doubt fall asleep after, a few quiz shows and that’s pretty much it, as I said… exciting.