Thursday 14th March 2024
And Then The Inevitable
Hi everyone I hope you’re doing well! Things continued on a similar path for me for a few days, I discovered how I could put on and off the brace myself which gave me a lot more freedom to do whatever whenever, within limitations obviously.
I was getting into a routine and being able to get techniques for doing different things and making things simpler I was still eating more than I normally would but that was ok, I also got a way of being able to carry coffee from the kitchen to where I sit.
I was still getting early stages of fevers and just feeling off at times, Friday I had some visitors around which was nice but just before I got really tired and drained and thought that I would be a complete bore, I enjoyed it at least.
And Saturday my niece, nephew and sister came over to help look after me as my mum and dad were heading out and Mothers’ Day. It was a nice night I stuck on Larry and Marge Go Large which was a decent movie and then just some Saturday evening tele.
During that time though I started getting a fever and it just progressed worse than it had before and just felt pretty terrible, this continued through the night and in the morning I was rough.
And I took the decision to call the hospital as I thought it was now at the point they might try to do something.
I was glad I did at that occasion cause my head was completely gone on Sunday, there was no focus and I was just in complete autopilot. I got there and just all the initial usual checks before anything and then I was eventually moved to my own bay downstairs. I was taken for an x-ray of the chest that evening.
All the usual blood pressure stuff going on which seemed to be the bigger issue to everyone which to me was causing more problems making me feel much worse but you can’t tell them what to do.
Started on strong antibiotics and was just getting all the test done from swabs, bloods, x-rays, CT-scans. Even checking the hip to see if that was maybe infected, the scar did develop and rash around it though but they have marked it and it hasn’t made any changes getting better or worse and seems to be staying the same.
Continue on and on Wednesday I felt pretty rotten, nothing to put the finger on exactly but the heart was playing up, cough was worse, lack of sleep and grumpy and just so tired and sore. I just wanted to roll up in a ball but even that’s impossible to do.
Today though I have felt a lot better, there have been less fevers and I’ve felt like being up and about more than previous days. Downside is that I’ve now started reacting to one of the antibiotics and have broken out in a rash and is getting itchy and a bit drowsy too so they switched antibiotics to see if that’ll help.
I have started eating a bit more today as well but the food is hard to eat, it’s not pleasant and sometime I’m quite thankful that I don’t get hungry.
The icing on the cake with everything though is that my mum is now in hospital and I’m really pissed off if it’s me or this infection that caused it, I don’t know anything about it yet though so I can’t tell, but I hope she get out soon and before me.Monday 4th March 2024
First Few Steps
So the first few days of March. To start I got out of hospital on Friday, Thursday evening I was pretty much just left to my own devices the usual carry on about new nurses and telling me to drink more water. I had the brace and the few times it was on I walked about a bit with the crutches and looking out the window and exercises.
Thursday night wasn’t pleasant, I was the only person in the bay but the nurses were still in and out and reception was just outside and the lights were keeping the place very bright. There was a LOT of coughing, not just by patients but by the nurses and staff as well. I was quite concerned about this and that evening had the feelings of an early fever again.
Friday morning, still the same they only done the blood pressure the once and I tried to sit out more but I had the brace on and it was very uncomfortable sitting with it and was asking advice for different things like how to go to the loo and sit comfortably, no one really knew anything, which wasn’t helpful.
It ended up that everyone was happy for me to leave and I was happy to leave because of so many people coughing and sneezing around me and I really didn’t want to be stuck there with an infection. If I was to get one, I’d prefer to be at home and then go to the normal hospital where they actually treat you as immunosuppressed and a bit more isolated.
All I had to do was wait for some meds and then I was away, this always takes ages though but eventually they arrived and I phoned for a lift home.
I walked down to the car at the door, I was just about able to get into the car with the brace on, thought for a bit that I might have had to take it off. The drive home was uncomfortable for me the movement on the cut was sore and I it seemed to open it up a bit and started to seep and bleed a little. Since then it hasn’t got any worse.
With the drive home I was very sore and just couldn’t get in a good position, everything hurt. Sleep that night wasn’t bad though I got to sleep reasonably fast and consistent the whole night.
Saturday was decent enough I didn’t do much and just relaxed all day to try and settle in. It’s pretty annoying having to get people to put on the brace each time I need to get up to go to the toilet and because of this on Sunday I kept it on most of the time, which makes sitting uncomfortable.
Sunday was a pretty crappy day I just felt awful in every way, being sore, tired and everything irritated me and there was nothing that could be done about it, as the day went on things did improve but that night I slept pretty crap awake for a long time and then a broken sleep too.
Monday I had a bit of a break, I have managed to put on the brace myself. Leaving out the bottom buckle I’m able to do the other three to make it sturdy enough that it works as it should and haven’t had any issues, obviously I’m still using the crutches but it has made things much easier for going to the toilet and putting it on and taking it off. Rather than having to get someone every time I can just do it and that’s that.
I’m about to head to bed, but I’m not sure if I can get into bed and take it off or will still need help with that and in the morning to put it on, I think if I was able to get over to the side of the bed I could put it on then ok but with not having any ability in the leg I may not be able to move myself over to do that with hurting my hip…
The hip itself hasn’t been too bad at all, it has been sore but not half as bad as it was and there now is progressively more tingling with the bruising arriving and also at times in the numb sections. Generally though the numbness hasn’t improved and at times almost seems worse as there seems to be a fluid build up in the evenings.
Today I seem to have ate too much, I’m tired and am really warm. I’ve been continually getting early stages of fevers but the paracetamol is keeping it at bay and also a bit of a cough and bunged up.
Tuesday I was supposed to be at hospital but that’s all really screwed, I’m booked in for treatment tomorrow but reception booked me in next week to see the doctor, I’d prefer to give myself time to adjust and go next week but I’ve been trying to get through and the helpline ahs told me to phone the suite and when I phone the suite no one answers so I dunno what’s happening.
No doubt I’ll get a call about it but I’ll not be going and could always play dumb and say oh I thought it was next week with being booked in.
Anyway there we go for now, I hope I get a decent sleep and am a wee bit more able again tomorrow.